Welcome on the Spinal Cord Injury part of my site.

Having a spinal cord injury, especially at a very high level, is terrible. I know how it is to be almost completely paralyzed, and being extremely dependent upon help from people and special tools. I know because a bus accident broke my neck at level C3/4. I can only move my head.
My first life ended at 26 years young. My second life started in 1995. Like one neverending nightmare. I hope you can not imagine. How many people's lives are down by this type of damage?! Let's discover how to repair a SCI as soon as possible! What is broken can be fixed.

Discover how to repair the spinal cord injury
- Make more people aware how terrible having a SCI is.
- Make it clear that more research could bring a repair.
- Mobilize people to give more priority to serious research.
Would that research be expensive? Yes of course, but look at it this way: how expensive is it NOT being able to repair a SCI? And if you would break your neck tomorrow, would you like there to be a repair?
And if we can fix a SCI, then what else can we fix!

Then again, it is not just a matter of money. If I had all the money in the world, doctors could still not fix it. We just can't do it. Not yet. In theory it is possible to repair a spinal cord. What we need to do is: stop making war and too many babies, and instead invest in all kinds of fundamental research.

Until the day that a spinal cord injury can be fixed, we have to survive. And therefore it helps to share the solutions to shared problems.
Here on my site I intend to share my story and my SCI-solutions for everyday challenges.

There is a new site online that collects all kinds of solutions, thought up by patients:
patient-innovation.com
(Not just SCI solutions. Any disability or illness)


Giesbert Nijhuis.

(note: I am slowly building this site, never done, always messy)
(note 2: some pages are in Dutch only).

REPAIR THE SPINAL CORD
Come on everybody, we can do this!

THE ROAD TO REPAIR
How can we get much more priority for all kinds of research? It's not just a matter of money.

SPINAL CORD INFORMATION
We need to discover as much as possible knowledge about a healthy spinal cord, how it reacts on trauma, and how it reacts on our help. I just collected some information about it, I'm certainty not a specialist.

HOW TO REPAIR
I truly believe it is possible to repair a damaged spinal cord -in theory.

VIDEO
A collection of videos about: stem cell research, growing new organs, and regenerative rehabilitation.

CARE ROBOTS
Chances are care robots will be here sooner than the spinal cord repair. In that case; I would like to have two robots please.
This is not a repair of the spinal cord, but it would be second best.

LINKS
Links to places where people are busy searching for ways to repair a spinal cord injury.

PRACTICAL SOLUTIONS
Share solutions!

PREVENT PRESSURE WOUNDS
Pressure wounds can have terrible even deadly consequences. How can we prevent them? I decided to design my own cushion.

COMPUTER ACCESS
It's very important for a quadriplegia to have very good access to normal computer, even when laying flat in bed. This page is about how I do it.

WHEELCHAIR TROUSER
It can be difficult to find a trouser that fits well.
Here is one solution.
Rolstoelbroek
Het is niet eenvoudig om een broek te vinden die goed zit. Hier een oplossing.

PHOTO ACCESS
How to take photos while being almost completely paralyzed?

PGB

PGB: Beter en Goedkoper
Zelfstandig kunnen wonen in een normale buurt. Regie over eigen zorg, over eigen leven.

MY PERSONAL STORY
Two "patients" are two unique individuals, and caregivers are people also. Let's not forget that.

MY SCI
Radiography photos of my Spinal Cord Injury (C 3/4)
Scary Photos!

Hoe het is
om een hoge dwarslaesie te hebben

De soorten zorg binnen mijn zorgnetwerkje