Navigation: LaesieWorks Spinal Cord Repair


Having a spinal cord injury at a very high level, being almost completely paralyzed, is terrible. I know because a bus accident broke my neck at the level C3/4. I can only move my head. My first life ended at 26 years young. My second life is not just different, I suffer every day, since 1995. How many people's lives are down by this type of damage?! Let's discover how to repair a SCI, NOW! What is broken can be fixed.

Discover how to repair the spinal cord injury
- Make everybody aware what makes it so terrible.
- Make it clear that more research could bring a repair.
- Mobilize people to give more priority to serious research.
- Let the money man calculate how much it costs if we DON'T repair it.

How to survive, while waiting for a repair
- Prevent decubitus (pressure wounds).
- Beware of infections (lungs, bladder, kidneys, skin).
- Always in pain.
- Medicine.
- Not being able to rest at night.
- Arrange quality care.
- Arrange quality care-tools.
- The chair, the bed.
- Get good computer access.
- The clothing. How to adjust clothing ment for standing active people.
- How to piss and shit.
- Always having a low condition, trying to be strong enough.
- How to deal with about 1/8 lung power.
- Not able to use your hands, and being compared to people who can.
- Sexuality?
- Muscles and bones. Use it or lose it.
- How to survive mentally. Anger, depression, disappointment.
- How to deal with the social issues.
- How to: financially & administration.
- How to deal with dependency and the lack of privacy
- How to deal with getting less care then you actually need.
- How to live in a city that is build for walking types.
- Other problems.



SCI POLITICS
How can we organize much more power into research?
What are the costs of NOT repairing it?


SPINAL CORD INFORMATION
We need to discover as much as possible knowledge about a healthy spinal cord, how it reacts on trauma, and how it reacts on our help. I just collected some information about it, I'm certainty not a specialist.

HOW TO REPAIR
Is it possible to repair a damaged spinal cord?! I truly believe so, in theory that is. How?
It's not a matter of money, nor is it a matter of time, just waiting and doing nothing will NEVER bring this solution.


CARE ROBOTS
We haven't done enough SCI research, so we still can't recover from a SCI. Chances are care robots will be here sooner than the spinal cord repair. In that case; I would like to have two robots please.

PREVENT PRESSURE WOUNDS
Pressure wounds can have terrible even deadly consequences. I had troubles with all the cushions on the market that I tried. So I then decided to design my own cushion.


COMPUTER ACCESS
It's can be very important for a quadriplegia to have very good access to normal computer & software, even when laying flat in bed. This page is about how I do it.

MY SCI
Radiography photos of my Spinal Cord Injury (C 3/4)
Scary Photos!


PHOTO ACCESS
How to take quality photos while being almost completely paralyzed?

Genezing?
Een overzicht van onderzoeken naar dwarslaesie reparatie. Tekst samengesteld door Peter Claessen en Jan P de Boer.


VIDEO
A collection of videos about: stem cell research, growing new organs, regenerative rehabilitation, and extraordinary wheelchairs.

SCI-SHIRTS and free Poster
The "iSuffer" design (head designed) can be downloaded for free. Print the high resolution file as a large poster, show this message: "iSuffer. We went to the moon in 1969. Why can't my body be repaired yet?! "


Links
Links to places where people are busy searching for ways to repair a spinal cord injury.