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Having a spinal cord injury at a very high level, being almost completely paralyzed, is terrible. I know because a bus accident broke my neck at the level C3/4. I can only move my head. My first life ended at 26 years young. My second life is not just different, I suffer every day, since 1995. How many people's lives are down by this type of damage?! Let's discover how to repair a SCI, NOW! What is broken can be fixed.
Discover how to repair the spinal cord injury
- Make everybody aware what makes it so terrible.
- Make it clear that more research could bring a repair.
- Mobilize people to give more priority to serious research.
- Let the money man calculate how much it costs if we DON'T repair it.
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How to survive, while waiting for a repair
- Prevent decubitus (pressure wounds).
- Beware of infections (lungs, bladder, kidneys, skin).
- Always in pain.
- Medicine.
- Not being able to rest at night.
- Arrange quality care.
- Arrange quality care-tools.
- The chair, the bed.
- Get good computer access.
- The clothing. How to adjust clothing ment for standing active people.
- How to piss and shit.
- Always having a low condition, trying to be strong enough.
- How to deal with about 1/8 lung power.
- Not able to use your hands, and being compared to people who can.
- Sexuality?
- Muscles and bones. Use it or lose it.
- How to survive mentally. Anger, depression, disappointment.
- How to deal with the social issues.
- How to: financially & administration.
- How to deal with dependency and the lack of privacy
- How to deal with getting less care then you actually need.
- How to live in a city that is build for walking types.
- Other problems.
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